Autism Bulletin

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Read our autism research year in review for 2022. Written by ASF's Science Advisory Board (SAB) with Chief Science Officer @AHalladay212. hubs.li/Q01wsDG20
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This is the first time I've written about the economic costs of PA's overly restrictive regulations on autism and I/DD services. If you're a taxpayer, you should care: thephiladelphiacitizen.org/guest-commenta…
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Argument against restraint and seclusion for disabled children in school: Why are schools submitting kids to this barbaric treatment? washingtonpost.com/opinions/2022/…
Reminder! @PBS will debut "In a Different Key," the Pulitzer Prize finalist book by @JohnDonvan and @caren_zucker that's been adapted into a movie on Tuesday, Dec. 13 at 9 p.m. ET. ASF proudly supports this project. Please tune in! Learn more here: hubs.li/Q01tw2B00
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Autism-specific therapies "should be available and accessible for children of all ages, genders, and all levels of intelligence," says study investigator Elisa Back. By @Emily_C_Harris. Link to study in @journalautism: bit.ly/3GNQHzk bit.ly/3VfQh9i
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My son’s autism is profound — and more common than you think wbur.fm/3OIQfEq via @cogwbur
GI issues can severely impact the quality of life for people with autism--and can even be life-threatening. The Consortium for Autism, Neurodevelopmental Disorders & Digestive Diseases (CANDID) is a program in partnership with ASF that addresses these challenging issues. (1/3)
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After years of tacitly endorsing the only facility in the country known to use electric shocks to address behavior in those with disabilities, a major ABA organization is coming out against the practice. disabilityscoop.com/2022/11/18/beh… #disabilities
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Autistic adolescents shared their experiences, interests and future plans in structured interviews designed to accommodate a range of verbal and cognitive abilities: bit.ly/3UhDWke Spectrum covered the interview protocol in a video in August. bit.ly/3UMx3Y1
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The deadline for public comments for the upcoming IACC meeting has been extended to Tuesday, October 18 at 5 p.m. ET. Read instructions for submitting a comment at iacc.hhs.gov/meetings/iacc-…
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Recent news from Massachusetts. First-of-its-kind law improves college access for students with autism, intellectual disabilities bostonglobe.com/2022/08/07/met… via @BostonGlobe
Planning for Your Retirement, and for a Child’s Special Needs, All at Once nytimes.com/2022/08/27/bus…
Disability advocates are warning that a case going before the U.S. #SupremeCourt could severely threaten the rights of millions of people who rely on #Medicaid and other government programs. disabilityscoop.com/2022/10/10/sup… #disabilities
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Listen to ASF President @alisonsinger describe why ABA can be a critical, life-changing intervention for people with profound autism in this in-depth piece on @WHYYThePulse (1/2) whyy.org/episodes/the-b…
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Access to ABA for those who need it is so important. There is a lot of information floating around about the malpractice of ABA. Please know that delivery evidence-based ABA is empowering to those who struggle with profound autism. Thanks @alisonsinger for speaking the truth. twitter.com/AutismScienceF…
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“Americans have accepted the mistreatment and neglect of people with serious mental illnesses for far too long. It’s within our power to break that cycle now, and to change the way that the most vulnerable among us live for generations to come.” nytimes.com/2022/10/04/opi…
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For Autistic Mothers, Breastfeeding Is Complicated nytimes.com/2022/10/04/hea…
An autism researcher who "has consistently worked to increase access to supportive interventions for traditionally marginalized, often minority populations." spectrumnews.org/news/profiles/… Newsletters via @Spectrum
"We recognize that we must change the application of our science so that it is client-centered, neurodiversity-affirming and equitable." ABA & autism: Flawed application of a proven science spectrumnews.org/opinion/viewpo… Newsletters via @Spectrum
Studies of autism tend to exclude women, researchers find via @mcgovernmit mcgovern.mit.edu/2022/09/08/stu…
1/ Both excited to see some more aging research being funded AND simultaneously disheartened not to see a grant funded with commitment to our highest need individuals with profound autism, who don’t have voices to tell NIH just how hung out to dry they are nimh.nih.gov/news/science-n…
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A staple of children's television is introducing its first-ever character with #autism, a series regular who will be voiced by an actor who's on the spectrum himself. disabilityscoop.com/2022/09/08/tho… #disabilities #thomasthetankengine
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Parents and clinicians say private equity’s profit fixation is short-changing kids with autism statnews.com/2022/08/15/pri… via @statnews h/t @AJOWhitehouse
At the next Sam’s Sibs Stick Together virtual meeting, we will be talking to sensational sibling @jessehmorris4! He will discuss his inspiration for starting @difpar, which invests in companies that are improving the lives of those who think and learn differently. (1/2)
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Only half of children with autism receive early intervention services: Socially disadvantaged children and those from minority backgrounds are less likely to receive services before 36 months of age, Rutgers University study finds sciencedaily.com/releases/2022/…
Artificial neural networks model face processing in autism mcgovern.mit.edu/2022/06/15/art…
Join us July 21 at 2PM Eastern for the next session of the 2022 #INSAR_Institute, "Autistic People’s Sleep Differences". Missed the other sessions? Open access recordings will be posted on our website. #INSARSTC #INSARARC Register for free at autism-insar.org/page/Institute…
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With new guidance, the U.S. Department of Education is putting schools on notice that they need to rethink the way they are disciplining students with #disabilities. disabilityscoop.com/2022/07/20/bid… #SpecialEducation #discipline
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ASF is proud to announce the launch of the first-of-its-kind 'Profound Autism' Pilot Grants! These grants are intended to support projects that will help those with “profound autism" as defined by the recent Lancet Commission report. (1/2) Learn more: autismsciencefoundation.org/press_releases…
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Editorial by autism researchers: evaluate purpose of early intervention. "At a Crossroads—Reconsidering the Goals of Autism Early Behavioral Intervention From a Neurodiversity Perspective" in JAMA Pediatrics autismcenter.duke.edu/sites/default/… twitter.com/RachelZamzow/s…
ASF's friends at the Eagles Autism Foundation have announced their pilot RFA. We hope the autism community takes advantage of this opportunity for funding in all areas of research. The letter of intent is due July 22nd. Click here to view the RFA: hubs.li/Q01gP3tk0
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Essay about disclosing autism diagnosis: "Disclosure can be very freeing – paving the way for you to be your authentic self. And yet, sometimes disclosure is also complicated and can elicit unexpected responses." aane.org/disclosure-cho… via @AANE09
Are you a college student who is also on the autism spectrum? Here is some support. A team at @RutgersGSAPP developed this Mental Health Guide for Autistic College Students, which provides tips to improve well-being and much more. Click the link or QR code in the graphic below:
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.@IACC_Autism will hold a virtual Strategic Plan Working Group Meeting on July 13 and 14 from 1 to 4:30 p.m. ET to discuss the 2021-22 IACC Strategic Plan under development. The free meeting will be accessible for public viewing. Register and learn more: hubs.li/Q01g23C70
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In this issue of Capitol Connection, find information on school safety and mental health bills and state advocacy resources on the 988 lifeline and employment. bit.ly/3QTZ134
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What's It Like to Be a Triathlete with Autism Spectrum Disorder or ADHD? via Triathlete.com triathlete.com/training/whats…
"I have never met a nonspeaking autistic person who lacked the motivation to engage in the social act of communication. [But] they may lack the tools to be able to communicate in a conventional, language-based way." Dr. Vikram Jaswal, interviewed at TPGA: thinkingautismguide.com/2022/03/believ…
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The IACC will be holding a working group meeting on July 13 and 14 for IACC members to discuss research, services, and policy priorities for the 2021-2022 IACC Strategic Plan. Learn more at: iacc.hhs.gov/meetings/worki…
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ASF is proud to partner with and support Autism Navigator, which offers a number of free resources for families and professionals to help you learn more about the early signs of autism, the importance of early intervention and much more. Access them here: hubs.ly/Q01fSQCp0
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With Roe Overturned, Advocates Fear Disability Rights May Be Next disabilityscoop.com/2022/06/27/wit…
Got questions about your infant? The BSRC video library has answers! Scientists with the ASF-supported Baby Siblings Research Consortium (BSRC) have produced a series of videos that answer the most common questions from families. Access them here: babysiblingsresearchconsortium.org/videos
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Important thread from parent of young man with autism twitter.com/Autismville/st…
This week, the Autism Sisters Project published this important paper in @CellGenomics that examined the presence of a Female Protective Effect in Autism: cell.com/cell-genomics/… 🧵T
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Do you have a child with autism and another one on the way, or under 6 months of age? The Infant Brain Imaging Study is recruiting families for behavioral and biological assessments. Sign up here: hubs.li/Q01dJ94w0 And learn more in their latest newsletter below:
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Support for parents. Interesting discussion. "When you learn your child has a disability, you may feel confused. Or relieved. Or scared...." exceptionallives.org/blog/my-child-…
Researchers report progress on understanding genetics of autism: Broad Spectrum of Autism Depends on Spectrum of Genetic Factors via @UCSanDiego ucsdnews.ucsd.edu/pressrelease/b…
Some useful links here: Autism Resources for Parents and for People on the Spectrum healthline.com/health/autism/… via @Healthline
The 2020 Summary of Advances in Autism Research, which highlights the top 20 most significant autism research articles of 2020 selected by the IACC has now been released, along with an easy-read version! Learn more: iacc.hhs.gov/publications/s…
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"How You Can Help the Office for Civil Rights Strengthen and Protect the Rights of Children with Disabilities," via Wrightslaw special education advocacy website: wrightslaw.com/info/sec.504.o… twitter.com/autismbulletin…
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