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Autistic and disabled abilities and tolerances can change significantly from day to day, and even situation to situation. One more reason why “high” and “low” functioning labels are not useful. Image description in post. m.facebook.com/story.php?stor… #Neurodiversity #disability

1 Feb

FB 🏴󠁧󠁢󠁳󠁣󠁴󠁿 @fiwb68

Great article, 'find your peeps', best advice ever. twitter.com/thinkingautism…

1 Feb

"So what’s going on? Does my autistic son lack social skills or not? The answer is that context matters. Socializing costs a lot of tokens. When Nick is in a situation that is already difficult for him, he won’t have those tokens to spare." Tasia, at TPGA: thinkingautismguide.com/2013/04/social…

1 Feb

"So many of us Autists have a lot to say but need the scaffolding to help us get those words out. This assistant has offered dozens of potential blog topics and sits ready to help outline any of them I’m ready to write." twitter.com/thinkingautism…

1 Feb

AAC takes time; that’s OK! If you are supporting someone who uses assistive communication (or using it yourself), remember that it’s not only natural but often necessary to slooooow down. Image description in post. #Neurodiversity #AAC #autism #Disability facebook.com/story.php?stor…

1 Feb

"Self-advocacy is fundamentally about true equality, respect, and power, and about recognizing & changing the current imbalances in all of those things. […] Real self-advocacy will always upset the status quo in some way." Mel Baggs, at TPGA: thinkingautismguide.com/2019/02/the-me… #disability

Helen Tager-Flusberg @HelenTager

31 Jan

Congratulations Megan! Such an important research program. Research Project Focuses on Promoting Dual-Language Development for Children with Autism in Bilingual Families : UMass Amherst umass.edu/news/article/r…

Toby Dandelion @TobyDandelion

31 Jan

Absolute fire. Literally going to make this required reading for anyone who says I'm important to them, lol twitter.com/thinkingautism…

31 Jan

Here are 10 tips for anyone who is new to understanding autism and autistic people! Please note that these are general guidelines. Every autistic person is different & can have different sensory and/or communication needs. @AutSciPerson: autisticscienceperson.com/2022/01/05/10-… #Neurodiversity

31 Jan

Nicole LeBlanc @nleblanc12

@thinkingautism us06web.zoom.us/webinar/regist… Webinar today 2pm EST Using NCAPPS Resources to Support Compliance with the HCBS Final Rule Requirements for Person-Centered Planning

31 Jan

AAC takes time; that’s OK! If you are supporting someone who uses assistive communication (or using it yourself), remember that it’s not only natural but often necessary to slooooow down. Image description in post. #Neurodiversity #AAC #autism #Disability facebook.com/story.php?stor…

31 Jan

Little Lobbyists @LittleLobbyists

Ahead of expected votes on GOP House bills to abruptly end the PHE, the Administration gave notice it will end in May to ensure an orderly transition. But #CovidIsNotOver. Congressional leaders failure to support response endangers millions at high risk. cnn.com/2023/01/30/pol…

Neurodiverse Connection UK @NDConnectionUK

31 Jan

Our monthly research blog by @AnnMemmott is now available, a round up of the recent Autism research direct from the journals, summarised for your ease ndconnection.co.uk/blog/autism-re…

31 Jan

Dr Lisa Quadt @LisaQuadt

My student is conducting a scoping review on autistic wellbeing. Of the >3500 papers we screened, most take measures of wellbeing of the PARENT/CARER. Not the autistic person. That tells you all you need to know about most traditional autism research.

31 Jan

Steven Kapp @drstevenkapp

The free book Autistic Community and the Neurodiversity Movement has been accessed 700k times! Thank you to the contributors and readers. It was difficult and came at personal sacrifice to edit the book alone. So grateful many have enjoyed it. �@ExDx_UoEElink.springer.com/book/10.1007/9…O

31 Jan

Sarah Kapit @SarahKapit

If you are doing research on ANY community, you should expect to receive feedback from that community! That's just basic. This goes doubly when your research has implications for medicalized treatments and educational practices.

31 Jan

Sarah Kapit @SarahKapit

All of this. I don't question that Twitter can sometimes be unpleasant. (Um, yes, we know?) But for autistic people, it is incredibly frustrating to hear that researchers who want to "help" us are so resistant to hearing our perspectives. twitter.com/shannonrosa/st…

31 Jan

Shawna Spain @likesevenspoon

Dealing with insurance for medications I need to do the job that gives me the insurance and money for these medications makes me want to cry. Every time. This should not be this hard.

31 Jan

Here are 10 tips for anyone who is new to understanding autism and autistic people! Please note that these are general guidelines. Every autistic person is different & can have different sensory and/or communication needs. @AutSciPerson: autisticscienceperson.com/2022/01/05/10-… #Neurodiversity

30 Jan

AssistiveWare @AssistiveWare

This Is Not About Me is now available for on-demand video group viewings. Want to watch the #documentary with more people or host a virtual event? Here’s how: assistivewa.re/3hbTe8R #ThisIsNotAboutMe #Autistic #NonSpeaking ##Disability

Autistic Self Advocacy Network @autselfadvocacy

30 Jan

We are outraged at the death of Tyre Nichols after an attack by police. Police violence harms Black and disabled people - and until our whole community is safe, none of us are. Our sympathy goes out to Nichols’ family in this time of overwhelming grief pbs.org/newshour/natio…

30 Jan

"Self-advocacy is fundamentally about true equality, respect, and power, and about recognizing & changing the current imbalances in all of those things. […] Real self-advocacy will always upset the status quo in some way." Mel Baggs, at TPGA: thinkingautismguide.com/2019/02/the-me… #disability

30 Jan

"So many of us Autists have a lot to say but need the scaffolding to help us get those words out. This assistant has offered dozens of potential blog topics and sits ready to help outline any of them I’m ready to write." twitter.com/thinkingautism…

30 Jan

How autistic people can benefit from ChatGPT—and vice versa: "One of the positives of GPT’s engaging with me is that I am giving GPT a chance to learn Autistic perspectives from an Autistic person." Max Sparrow @UnstrangeMind, at TPGA: thinkingautismguide.com/2023/01/i-embr… #Neurodiversity

30 Jan

"I am good at school; surely that means I am good with executive functioning? And then I took an executive functioning test & I was like [laughs] no, no." Autistic stress/burnout author Amelia Nagoski; video with transcript. youtu.be/Qiv1qiy0PuM #Neurodiversity #ADHD #autism

30 Jan

How autistic people can benefit from ChatGPT—and vice versa: "One of the positives of GPT’s engaging with me is that I am giving GPT a chance to learn Autistic perspectives from an Autistic person." Max Sparrow @UnstrangeMind, at TPGA: thinkingautismguide.com/2023/01/i-embr… #Neurodiversity

30 Jan

Please ignore those fear-mongering headlines about Autism! Rates! Tripling! The truth behind the hype is that we are getting better at identifying autistic kids who don't have ID—though we still need to do better by Black & Hispanic kids. nbcnews.com/health/health-… #Neurodiversity

30 Jan

"I am good at school; surely that means I am good with executive functioning? And then I took an executive functioning test & I was like [laughs] no, no." Autistic stress/burnout author Amelia Nagoski; video with transcript. youtu.be/Qiv1qiy0PuM #Neurodiversity #ADHD #autism

29 Jan

Tired neuropsychologist @Orchidae3

One of the consequences of low-quality evidence-based research around various kinds of neurodivergence is you often need to cite massive anecdotal evidence from actually neurodivergent people instead of research re supports because it’s more trustworthy.

Dr Georgia Pavlopoulou (she/her) @JoPavlopoulou

29 Jan

I can not stress enough how much we need good resources in different languages. I am in contact with so many families who dont speak English, are not on social and have only access to highly visible AutismSpeak resources or aba providers that franchise in their countries :(

Dr Georgia Pavlopoulou (she/her) @JoPavlopoulou

29 Jan

Are there any neurodiversity affirmative resources in Arabic? Any videos explaining communication, senses, monotropism?

29 Jan

“Living at multiple axes of oppression can be heavy. The many identities you hold and your lived experiences are not in conflict with each other; they make you sharp, whole, & extraordinary.” @SFdirewolf in her also-extraordinary book Year of the Tiger: disabilityvisibilityproject.com/book/tiger/?amp

29 Jan

Autie-biographical Comics @Teesy738

Please ignore those fear-mongering headlines about Autism! Rates! Tripling! The truth behind the hype is that we are getting better at identifying autistic kids who don't have ID—though we still need to do better by Black & Hispanic kids. nbcnews.com/health/health-… #Neurodiversity

29 Jan

The parents who claim they "lost the war against autism" are 100% the parents who make it all about themselves. #AutieBiographical #ActuallyAutistic #Autism #Autistic

Amanda 🇺🇦 trans rights = human rights @AmandaQuirky

29 Jan

..."she can't be autistic, she's JUST LIKE YOU (me) at that age" I spoke. That's the single thing that kept me from an autism dx at age 6 (when I was assessed for "emotional disturbance" because I was so obviously weird). Profound autism, my butthole. 2/2

Amanda 🇺🇦 trans rights = human rights @AmandaQuirky

29 Jan

I don't know why I'm thinking of this (I do know) but I'd like to once again point out that when my daughter (still semi-speaking at home and nonspeaking everywhere else, with moderate intellectual disability as well as being autistic) was being dx my mom kept saying... 1/2

29 Jan

Jenny Mai Phan @JennyMaiPhanPhD

A community-grounded partnership (self-advocates, families, etc.) with the Ethics Review Board/IRB is necessary to change this ongoing exclusion of people with I/DD and understudied population in research.

29 Jan

Jenny Mai Phan @JennyMaiPhanPhD

"..informed consent—supposedly central to ethical research relations—can cause harm by reifying ableist notions of capacity while simultaneously purporting to protect participants. How do we reduce, if not eliminate, this harm, especially for those deemed incapable of consent?"👇twitter.com/autselfadvocac…F

Autie-biographical Comics @Teesy738

29 Jan

A reminder to take care of yourself the best you can. I understand that sometimes you can completely forget important things like drinking water, eating food, or taking your meds. Do your best to be kind to yourself. #AutieBiographical #ActuallyAutistic #SelfCare

29 Jan

As for my bullying quote, I'm bummed, as I tried very hard to convey that the tweets in question could only be perceived as bullying by people who didn't understand the context and power dynamics. I sincerely apologize to people hurt by my participation in this article. 8/8

28 Jan

That poor guy. Lutz's son and my son and their high-support peers deserve reporting that generates compassion for them as humans, even as they struggle. Stories like this make my son's life harder, and her son's too. 7/

28 Jan

Lutz depicts her son solely as a burden, a position not questioned in any way—quite the opposite, lauding her "dedication." It was not his fault she took him on cruise he couldn't tolerate, & however difficult she found the trip, I assure you it was far more upsetting for him. 6/

28 Jan

Amy Lutz has been intentionally disingenuous about the #neurodiversity movement excluding autistic people like her son and mine for a full decade now. It is unclear to me why her claims are given validity given that she is consistently and publicly corrected on the matter. 5/

28 Jan

But in autism research, there is indeed the added power dynamics. Framing the story with opening accounts of autism researchers under attack, when the majority of autism research has for decades dehumanized autistic people & disregarded their input, feels like punching down. 4/

28 Jan

I have now told the author directly why I am distressed: Disagreements—often unpleasant ones—are part of being in academia, and (as he and I had discussed) largely inescapable on Twitter. That is not specific to autism research. 3/

28 Jan

I did read the article upon publication, while traveling with my son. My 1st reaction was distress (see photo below of me grumping on the Space Mountain rollercoaster). I snapped back to IRL land after seeing this photo. My son deserved a fully present companion on his trip. 2/

28 Jan

Really appreciate @drstevenkapp raising these points on Spectrum's "Autism research at the crossroads" article. Recommend reading @AnnMemmott's response: annsautism.blogspot.com/2023/01/on-lov… And @DrMBotha's response thread as well: twitter.com/DrMBotha/statu… #Neurodiversity 1/ twitter.com/drstevenkapp/s…

Autistic Self Advocacy Network @autselfadvocacy

28 Jan

Consent policies that classify autistic people and other people with I/DD as lacking the ability to consent are a major barrier to community based participatory research that includes and prioritizes people with I/DD. culanth.org/fieldsights/ru…

EC 🐾🌴✏🎨🎬🌊🐺🦋 @Siennapup1024

28 Jan

@Rasheeradiara @Madiii03 @autisticcareers @Olas_Truth @WeAreAutastic @thinkingautism The increase isn't surprising, autism diagnosis numbers have going up for years. Article does have ableist language & is mostly statistics we already know. twitter.com/GMA/status/161…

28 Jan

Pete Wharmby @commaficionado

Still reeling from that Spectrum news article which tried to paint some of the finest autistic activists (and me) as rabble-rousing monsters attacking science. I'm still furious. How dare they?